Sharing My Story for Rare Disease Day

February 28, 2014, is Rare Disease Day and while this is not something that is all that rare, it is something that not many people hear about.

I’ve been sick all my life, and my Mom never believed me. Who’s sick every day? Me, I guess.

I started as thinking it was only onions, but more and more foods were making me sick with elimination trials. Since I am also allergic to Bactrim and knew onions were a definite culprit, the Doctor said to avoid sulfites all together (which is difficult enough by itself). Still, not much had changed so I continued researching and consulting others with the same symptoms and was led to Gastroparesis.

I now believe myself and three of my children have Gastroparesis as well as a sulphite sensitivity. When I think back of the symptoms, I am sure my Dad and Grandmother had Gastroparesis as well. They both complained about stomach pains, bloating, and food in their throats after eating.

What is Gastroparesis?

What is Gastroparesis?

No, I have not gone for official testing or a Doctor’s diagnosis, but have done enough research to feel that I have finally found an answer.

What this means is that food digests very slowly, and will often sit in the stomach fermenting for 12+ hours which makes us sick and prevents the nutrients from absorbing in the way they are supposed to. It also means we fluxuate between having no appetite, or an unsatisfiable appetite that leads to overeating. It is caused by damage to the vagus nerve, which I’m told can be hereditary but haven’t found a solid source that confirms this. A scratchy rough voice is also a symptom since this nerve controls the stomach and voice box, but the symptoms and severity vary from person to person and even from day to day so they can be difficult to pinpoint.

Whole grains, most raw fruits & veggies, any peels from fruits & veggies, dairy, yeast, sulfites (onions, eggs, and almost everything in a box, can, or frozen veggies), beer, wine (some sources say all alcohol), caffeine, and foods high in thiamines (pasta), fiber, and protein are what we are supposed to avoid or limit eating. When I say all food makes me sick it’s not a joke!

When I started paying more attention to eating healthy foods, making smoothies, and serving more raw fruits and veggies, instead of making us healthier it actually made us worse! We can eat these foods in small quantities and suffer small consequences for it, but normal sized meals almost guarantee we will be sick the next morning. This includes normal sized meals that are easily digestible foods like chicken and white rice.

someecards.com - I'm starting to feel sick tomorrow.

People with Gastroparesis are recommended to eat 6-9 small meals a day instead of the standard 3, but sometimes I will go for days without eating because I just don’t have an appetite. When I don’t eat, I don’t have any food in my gut making me sick! This is obviously not a solution, around day 4 I usually wake up with terrible hunger pains and begin the overeating part of the cycle. The first time I brought this up to a Doctor was when I was pregnant with my now 14 year old son. When they asked what my diet was, I told them I didn’t eat much of anything – and I was laughed at.

Many days my symptoms are manageable, there might be some lingering stomach pain, nausea, or discomfort that exists yet doesn’t interfere with the day in a big way. A day with no noticeable symptoms rarely happens, but the more I watch what I’m eating and be sure to limit the quantities to small meals the better it gets. With medication it could be better, but I’ll save the full story of my aversion to Doctors and the side effects of their medications for another time.

Source used:

“Gastroparesis Treatments, Symptoms, Causes.” Web MD. N.p., n. d. Web. 27 Feb. 2014. <http://www.webmd.com/digestive-disorders/gastroparesis>.

All other information based on my personal experiences.

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Giveaway: Family Pass to Disney’s PLANES Screening (WINNIPEG Only)

In about 3 weeks, I’ll be taking my family to a screening of Disney’s Planes at SilverCity Polo Park courtesy of Disney Canada and I’ve got a family pass for 4 to give away to one of my local readers as well!

Disney's Planes Come Fly With Me

From above the world of “Cars” comes Disney’s “Planes,” an action-packed 3D animated comedy adventure featuring Dusty, a small-town plane with dreams of competing as a high-flying air racer. But Dusty’s not exactly built for racing—and he happens to be afraid of heights. So he turns to naval aviator Skipper, who helps Dusty qualify to take on Ripslinger, the defending champ of the race circuit. Dusty’s courage is put to the ultimate test as he aims to reach heights he never dreamed possible, giving a spellbound world the inspiration to soar. “Planes” takes off in theatres in 3D on Aug. 9, 2013, and will be presented in Disney Digital 3D in select theatres.

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Summer 2013 Biannual Blogathon Bash Kick Off

What is the Biannual Blogathon?

The Biannual Blogathon Bash is an event for bloggers which runs twice a year, with some mini Blogathon events in between. The Summer Blogathon Bash is running from June 21-24, 2013, and is a time for bloggers to work on improving their blogs with a series of challenges and tasks with the support of other participants throughout the weekend. This time can also be used for bloggers to catch up on work they are behind on, or maybe even get ahead a little by putting in some extra dedicated hours. There’s a long list of blogging related prizes for eligible participants, and as a community we help each other grow our blogs.

Biannual Blogathon Bash

This time around, I decided to host a couple of challenges here on my own blog. This was a challenge for me in itself because even though I myself know how to do these things, getting what I’m doing into words that flow together smoothly is a completely different thing. I enjoyed it though, and will have more tutorials to most soon.

Besides working my way through the challenges presented in the Blogathon, I made a short list of tasks for myself to accomplish this weekend:

Tweak my social media buttons

I still need to add a button for Google+ and Bloglovin, and might change the icons.

Cover Photos

My Facebook page has never had a cover photo, and my Google+ cover is still the old size. While I’m doing that, I should get a better profile picture up on Pinterest too.

Are you up for the challenge?

The challenges I have posted for the Biannual Blogathon are:

Make Your Own Media Kit

Make Your Own Blog Button

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Mini Challenge: Make Your Own Media Kit

Are you a blogger? The Biannual Blogathon Bash is running from June 21-24, 2013 and is a time for bloggers to work on improving their blogs with a series of challenges and tasks. Prizes are awarded to eligible participants, and as a community we help each other grow our blogs.

This is a Mini Challenge written for the Biannual Blogathon Bash. Anyone reading is welcome to use this information or try my challenge but only Blogathon participants will be eligible for prizes.

Biannual Blogathon Bash

The challenge…

Mini Challenge: Make Your Own Media Kit

Making a media kit is more difficult than making a simple button, but the benefits it holds for your blog are well worth the time you will take putting it together. Think of your media kit as the resume of your blog. It is often the first impression potential sponsors will get of your blog, so try to make it both visually appealing and informative.

Not sure which program to use to create your media kit? There are many great programs out there, but you can use any one you like. Even Paint! I personally use Paint.NET so if you are using a different program the steps may be slightly different than they are in this tutorial.

Your task for this challenge is to make a media kit. It can be as basic or complex as you like, and use no images or 10 images! It’s not up to me to tell you what your media kit should look like, I’m just here to tell you how to do it. I’ve written a short tutorial on creating a graphic media kit using Paint.NET, and have also included an easy to use text based media kit template for a less time consuming option near the bottom of this post.

How Do I Make A Media Kit?

800x600redmediakitmisfitmomma
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Mini Challenge: Make Your Own Blog Button

Are you a blogger? The Biannual Blogathon Bash is running from June 21-24, 2013 and is a time for bloggers to work on improving their blogs with a series of challenges and tasks. Prizes are awarded to eligible participants, and as a community we help each other grow our blogs.

This is a Mini Challenge written for the Biannual Blogathon Bash. Anyone reading is welcome to use this information or try my challenge but only Blogathon participants will be eligible for prizes.

Biannual Blogathon Bash

The challenge…

Mini Challenge: Make Your Own Blog Button

Making a button for your blog isn’t as hard as it sounds, all it takes is a little bit of time and creativity along with some simple coding to add it to your blog. With this tutorial, you can make your own blog button in 5 easy steps.

Not sure which program to use to create your blog button? There are many great programs out there, but you can use any one you like. Even Paint! I personally use Paint.NET.

Your task for this challenge is to make a button. Any button! As fancy or as plain as you like. Add your button to your sidebar or a blog post and leave me a comment to let me know you did so I can go check it out!

How Do I Make A Blog Button?

How to make a blog btton

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